Preliminary development of a leg lymphoedema self-care adherence questionnaire

JL Martin, ML McCarroll, NW Doyle
7 September 2021

Lymphoedema is a chronic, incurable condition that requires lifelong self-care management. Chronic disease self-care management is a complicated process that varies between clients at both the group and individual levels. The Information-Motivation-Behavioral Skills model is a social psychological conceptualisation designed to understand and promote health-related behaviour. The LifeWindows Information-Motivation-Behavioral Skills Adherence Questionnaire was adapted to create the Information-Motivation-Behavioral Skills Leg Lymphedema Self-Care Adherence Questionnaire (IMB-LL-SCAQ). The IMB-LL-SCAQ is a client self-reported questionnaire with 18 statements or questions and a numeric rating scale designed to help lymphoedema practitioners objectively assess client factors related to self-care adherence. This project examined preliminary face validity and clinical utility of the IMB-LL-SCAQ. Two out of four lymphoedema therapists completed the questionnaire review and a survey. Based on the responses, self-care adherence is relevant to their practice. In terms of clinical utility, the therapists reported the IMB-LL-SCAQ was easy to follow and understand, and they felt their clients would be able to complete it in a timely fashion. The IMB-LL-SCAQ is a step towards understanding our clients’ self-care adherence strengths and weaknesses.

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