<p>As the mother of a young person with lymphoedema, I have often reflected on the life of my child and how the condition has affected our family. This article is the first time those thoughts have been articulated to a wider audience, and my purpose is to reflect on the experience for the benefit of my family and other families who may experience a similar situation. No two families are the same and so this account is a very personal insight into our family from the day our baby girl was born.</p>