Share this article

A patient-based self-examination survey for staging the severity of lymphoedema

Andrea Mangion, Carol Morris, Sharon Czerniec, Teresa Lee
8 June 2017

<p>Background: A lymphoedema self-assessment tool can help therapists deliver appropriate advice, and prioritise patients who are on waiting lists or who cannot access a lymphoedema clinic. Aims: This pilot study aims to assess the validity and reliability of the Lymphoedema Self-Examination Survey (LYSES) and the relationship between outcomes obtained through LYSES and healthcare professionals’ lymphoedema assessment. Methods: Participants with lymphoedema (n=54) completed the LYSES, with the same survey repeated 1 week later. Bioimpedance measurement and International Society of Lymphology (ISL) staging were conducted by lymphoedema healthcare professionals, blinded to each other. Results: There was little agreement between self-reports of elevation being helpful and ISL staging of ≤I (к= −0.154), substantial agreement between self-reports of indentation and ISL staging of II (к=0.631), and poor agreement between self-reports and healthcare professionals’ reports of skin firmness and skin changes (>ISL stage IIb) (к=0.089 and к=0.466, respectively). Lymphoedema severity based on ISL staging was able to account for 31% of the variability in L-Dex rank scores (p=0.005). Conclusion: LYSES cannot be used as an accurate self-report survey.</p>

Free for all healthcare professionals

Sign up to the Wounds Group journals

By clicking ‘Subscribe’, you are agreeing that the Wounds Group are able to email you periodic newsletters. You may unsubscribe from these at any time. Your info is safe with us and we will never sell or trade your details. For information please review our privacy policy.

Are you a healthcare professional? This website is for healthcare professionals only. To continue, please confirm that you are a healthcare professional below.

We use cookies responsibly to ensure that we give you the best experience on our website. If you continue without changing your browser settings, we’ll assume that you are happy to receive all cookies on this website. Read about how we use cookies.

I am not a healthcare professional.