Patient recall and retention of lymphoedema-linked education knowledge following breast cancer surgery in Australia

Daniel Lindsay, Janet Lemcke, Nicola Starkey, Tilley Pain
15 August 2022

Introduction: Education on lymphoedema and lymphoedema risk is an essential part of the cancer care package. This study evaluated recall and retention of lymphoedema-linked education knowledge in patients following breast cancer surgery. Method: Seventy participants at risk of developing lymphoedema were assigned to a 1:1 or group education programme. Surveys captured self-reported recall of their lymphoedema education and demonstration of upper-limb exercises over 12 months. Results: Participant’s ability to recall lymphoedema education and associated exercises decreased over time. Recall increased by 12 months but remained suboptimal. Delivery method and lymphoedema risk category were not significant factors affecting participants recall. Conclusion: Recall and retention of lymphoedema education was sub-optimal, however, participants with clinical symptoms demonstrated greater knowledge and performance.

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